The Communicative Participation Research Project
University of Washington

Department of Rehabilitation Medicine

with contributions from members of the
Department of Speech and Hearing Sciences
Department of Otolaryngology

What is Communicative Participation?
Project Team Members
Project Publications
UW Rehabilitation Medicine
UW Speech and Hearing Sciences
UW Otolaryngology
The Communicative Participation Research Project
Research Participants Needed

In our current research project we are creating a questionnaire about how communication disorders affect participation in everyday life activities. When this questionnaire is done, it will be used by healthcare providers to better understand the experiences of people with communication disorders. It will also be used in future research to learn more about the real-life impact of communication disorders. Our goal is that this questionnaire will be one of several tools that clinicians can use to help people with communication disorders improve their participation in activities that they want to do. We have a large set of draft questions ready, and we need your help to create the final questionnaire.

Who can participate?
  • Adults who have been diagnosed with Amyotrophic Lateral Sclerosis (ALS), Multiple Sclerosis (MS), or any type of head and neck cancer at least three months ago
  • Adults age 18 or older who speak, read and write English. We seek racial and ethnic diversity. Minorities are strongly encouraged to participate.
  • Individuals who live at home or other community settings such as assisted living (nursing home residents are not eligible)
  • Individuals must use speech as their primary communication method. You may use writing or augmentative devices to help you communicate at times. Individuals who have had a laryngectomy may use any speech method (electrolarynx, TEP, esophageal speech)
  • It does not matter what kind of treatments you have had for your medical condition
What will I be asked to do?
  • You will be asked to fill out a set of questionnaires. The main questionnaire asks about the impact of your condition on daily communication activities (e.g. Making phone calls; Talking to clerks in stores). Other questionnaires ask about other symptoms related to your medical condition; your quality of life; and demographic information (e.g. age, medical history).
  • You may fill out these questionnaires at home on your own schedule
  • You may fill out these questionnaires online, OR on paper forms that we will send to you. Please let us know if you want web or paper questionnaires when you contact us.
What else should I know?
  • Participants will receive $20 (choice of payment by check or Amazon.com gift card) for completing the questionnaires
  • We anticipate that it will take you about one hour to finish the questionnaires. You may work at your own pace and take breaks as you need.
  • Your participation is voluntary. You are free to stop your participation any time. Your participation is NOT related to medical care you may be receiving at any healthcare facility. Your participation is NOT related to your involvement in any support or advocacy groups.

If you are interested or want to learn more, contact:

Carolyn Baylor, PhD, CCC-SLP

Email: commpart@u.washington.edu (Please remember we cannot guarantee the confidentiality of information sent over email)

Phone: 206-221-3563 (leave voice mail)

Mail: Box 356490; University of Washington; Seattle WA  98195